
Healthlink Solutions goal is to enhance our healthcare system to be more effective, personalized, and improve the quality of life of those suffering. We offer patient/client anonymity with every research study. The purpose of our studies is to understand from a patient/caregiver perspective what it is like to be diagnosed or care for those diagnosed with certain illnesses. The sponsoring companies we work with have teams that look into patient/caregiver experiences. The outcome of our studies is based on the information shared by you and other respondents.
Healthlink Solutions was founded by Chiarra Rohr, who has over five years of experience in providing exceptional fieldwork services to businesses of all sizes. Chiarra targets rare diseases and has networked with over 300 different medical conditions.
We believe that research methodologies should be tailored to each client's specific needs and goals. We manage every study diligently. Healthlink Solutions makes client/respondent anonymity a priority when working on a study.
We are trained to provide clients with unique and rare disease patients, caregivers, advocates, and physicians. At Healthlink Solutions we are focused on building connections with our respondents. Our goal is to understand respondent experiences and needs within the community and provide valuable feedback to our clientele in order to advance health care.
If you’d like to be contacted about future studies, please fill out the form and share which conditions you have been diagnosed with or support as a caregiver.
All information provided will remain confidential and you will only be contacted regarding a study that you might qualify for.
Healthlink Solutions is committed to protecting your privacy and ensuring the security of your personal health information in accordance with the Health Insurance Portability and Accountability Act (HIPAA).
Information We Collect & Use
We collect and process personal and health-related data solely for patient recruitment, research facilitation, and healthcare innovation. Your information is used to connect you with relevant studies, enhance healthcare insights, and comply with legal requirements.
How We Protect Your Data
We implement strict security measures to safeguard your information against unauthorized access, loss, or misuse. Your data is encrypted, stored securely, and shared only with authorized entities in compliance with HIPAA standards.
Your Rights
You have the right to access, correct, or request deletion of your health data. You can also restrict certain uses or revoke consent at any time. You also have the right to remove yourself from any study and deny answering any questions by contacting chiarrarohr@healthlinksolution.org.
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